April 17, 2013 Wednesday

The past couple of days have been almost the same….it’s hard being with mom as she is so far out there. What I mean is that she cannot find the words and when she does they do not make sense. You have to guess and guess and guess again. Sometimes she just gives up; I imagine she thinks we are stupid.

The new hospice situation is not much better yet….and the new doctor thing is ridiculous.  I am almost certain it will get screwed up now that the nursing supervisor Leslie is involved.  I was just trying to get plastic forks and spoons delivered on my mother’s food tray as she can handle them better. It’s impossible. I guess it’s something I could bring up  to the visiting Medicare and Med-ical auditors?

So mom reports that her legs are numb so I call hospice, but with this hospice they wants the SNF to try and fix things and then call hospice if they cannot resolve it. The other hospice was just the opposite and the SNF liked that. J of course, less to do.

So, for sure mom will get lost in the shuffle unless I stay on top of it. The nurse (case mgr.) was off today and that throws everything off. What a screwed up mess. No one to back them up, really?

Mom told me yesterday that this is a waste of time. I asked what is. She said staying here. I asked as opposed to what? She did not know.

It’s very hard to go see her every day.