April 8, 2013 Monday

I am still waiting for a call from the hospice doctor.  Mom is still having pain in her hands and now her ears, teeth and head aches. When I got to the SNF today she was trying to ask the CAN for something but she could not find the words. It took me 15 minutes to figure out it was cotton for her ears; that always meant in the past that she was having sinus issues.  She said marshmallows and then I asked what is it for? Her ears….ok, cotton. 

I put a call into another hospice organization to see if they have a doctor that is not the SNF doctor. If they do I will switch. It will mean new staff for her and I told her about it and she said she didn't like the current hospice workers anyway.

I did receive a call from the Director of Risk Management at Palomar today. It was a result of my April 2, inquiry. She said she thought I had been getting verbal updates….no!  So she said since I was asking for compensation (which I did not ask for any money, only services) that the insurance company would be getting in touch with me soon. GREAT! I cannot accept any money unless it’s a boat load b/c then it would screw up mom’s medical coverage benefits. That figures, right? And I asked what about the other issue we described in the letter such as an apology and a reprimand and policy change to prevent this from happening again? She said she could not tell me the detail on that but it had been handled. I told her it would have been nice to get a letter to that effect as the way it looks on this end is that nothing happened and no one care.

I spoke to the retina specialist and he referred me back to the eye doctor. Al of this is because i don’t want her to lose her eye and she is not able to travel any more.  The retina specialist told me to keep asking about pain and to have her read to me occasionally and track the deterioration.

I have an appointment with a cremation company tomorrow. I may as well get all this lined up so when she does pass I don’t have to worry with it.